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Ethics Executive

Genomics England - Ethics team / Chief Scientists Division

Location: London
Salary: £31,417 per annum
Hours: Full Time
Contract Type: Fixed-Term/Contract
Placed On: 3rd January 2019
Closes: 3rd March 2019

Reporting to: Head of Ethics
Direct reports: None

The Ethics Executive provides the secretariat for the Ethics Advisory Committee (EAC) and the Access Review Committee (ARC) and contributes regulatory and ethics advice on policy to Genomics England. The post holder provide comprehensive administrative support to the Ethics programme and will work with the Head of Ethics to maintain its smooth running.

Key accountabilities:

  • Provide the secretariat for the Ethics Advisory Committee and the Access Review Committee, organising these effectively, and attending these and agreed Genomics England internal meetings to represent the Ethics work stream as required to support the Head of Ethics.
  • Assist in the development of guidelines and policies in association with the Head of Ethics.
  • Assist in the continual update and improvement of content management and record keeping
  • Contribute to appropriate progress reports for the relevant boards and committees.
  • Act as the first point of contact for ethics matters with relevant enquiries escalated as appropriate.
  • In association with the Head of Ethics, assist with making public the activity of Genomics England in relation to ethics and governance, via the Communications team as appropriate, in order to increase transparency and share good practice.
  • To help develop and maintain the ethics workspace on shared systems.
  • To maintain awareness of the legal and ethical frameworks for biomedical, health services and public health research, including clinical trials and research tissue banks.
  • To provide ad hoc administrative support to other Genomics England advisory committees as required.
  • Support the Head of Ethics and to deputise as required.
  • Any other duties appropriate to the role.

Essential skill, knowledge and behaviours required:

  • Committee experience (e.g. managing an NRES REC committee or hospital or university Ethics Committee, or similar)
  • Understanding of the concepts of Research Governance Framework, Good Clinical Practice.
  • Degree (ideally science, medical, legal or related degree) or equivalent relevant experience.
  • Well organised, able to prioritise conflicting tasks and meet operational deadlines.
  • Strong written and verbal communication skills
  • Awareness of project management tools and techniques, (e.g. project plans, risk and issues logs, stakeholder mapping tools)
  • Knowledge of the workings of relevant external authorities and regulatory agencies.
  • Motivated to have significant positive impact on sometimes detailed issues and to get involved in any task required, as well as challenging any non-essential work
  • Contributes to the success of other team members’ work
  • Passionate about making a global impact on healthcare and research
  • Resilient, committed and adaptable, taking a positive and innovative approach to overcome barriers.

Desirable:

  • Understanding of relevant statute and relevant common law
  • Understanding of regulatory roles and requirements in research ethics and tissue banking and data sharing.
  • Formal training in research governance or management.
  • Knowledge of ethics policies in comparable research projects and other relevant organisations
  • Awareness of ethical and legal issues (and professional debates) relating to genetics/genomics, the handling and storage of human tissue and storage and around access to personal and health data.
  • Research experience or experience as a REC assistant or manager, tissue bank manager, research manager, relevant academic researcher, or relevant regulatory or policy environment experience.
  • Knowledge of processes and research governance issues involved in a wide range of biomedical, health services and public health research in the HE sector and/or in the NHS.
  • Knowledge of how a broad range of genetics and biomedical, clinical, and social science projects are conducted.
   
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