Senior Clinical Academic Coordinator for North Star Clinical Network

University College London - Great Ormond Street Institute of Child Health

The Dubowitz Neuromuscular Centre is the largest paediatric neuromuscular centre in UK, and has a strong research interest in the causes and treatment of muscular dystrophies and other neuromuscular disorders in children. The UK North Star Clinical Network for Paediatric Neuromuscular Disease Management is a clinical collaboration of 23 UK Neuromuscular centres. The network academic lead is Prof Muntoni, and the clinical lead is Dr Adnan Manzur. The national hub for this network is based at Institute of Child Health/University College London, and Great Ormond Street Hospital, with funding support through a grant from MDUK. NHS England and NICE have tasked North Star network with the collection and analysis of data for nonsense mutation Duchenne muscular dystrophy patients treated with a novel treatment, Ataluren over a five-year period. The Senior Clinical Academic coordinator job is a newly established post, to enable the successful implementation of North Star project upgrade in clinical and academic domains, and to deliver the North Star network obligations under the NICE NHS England ataluren managed access agreement, as described above.  

The post holder will supervise and work very closely with the network co-ordinator, who is responsible for day to day administrative and organisational aspects of the network. The postholder will have a major role in further development of the clinical network, outcome measures evaluation and academic developments with participation in national and international meetings. The post gives a unique opportunity, applicable to both doctors and physiotherapists, to enhance clinical network organisational skills at a national level, to learn about standards of care implementation, new therapeutic interventions, and improving outcome measures in Duchenne muscular dystrophy, preparation of scientific papers, and their presentation / publication, and research in this area spanning medical and physiotherapy aspects. 

This post is available for 3 years and 10 months in the first instance.

The post is open to 2 groups of professionals, with primary qualifications as follows: Primary medical qualification as a doctor (equivalent of MBBS), with postgraduate qualification (equivalent of MRPCH, or research MD) in paediatrics or allied speciality or adult neurology, or Primary physiotherapy qualification with Higher degree in physiotherapy, with Health Professions Council Registration, and Membership of the Chartered Society of Physiotherapy. The successful candidate will have excellent organisational and time management skills and the ability to communicate with people at all levels.

Applicants should apply online. To access further details about the position and how to apply please click on the ‘Apply’ button below.

If you have any queries regarding the vacancy or the application process, please contact Madhur Sharma on quoting job reference.

Closing Date: 3 January 2017

Latest time for the submission of applications: 23:59.

Interview Date: 16 January

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