Patient and Public Involvement and Engagement (PPIE) Manager (0.8 FTE)

HDR UK are committed to meaningful involvement and engagement where patients and the public are actively involved in shaping our work and decision-making. Reporting to the Senior Public Involvement and Engagement Manager and matrix managed within the Big Data for Complex Disease team, this is a pivotal role that will maintain and build upon an established strategy and programme of activities embedding the patient and public voice at all stages of work with the Driver Programme.

Your work will also support best practice delivered as part of the Public Engagement in Data Research Initiative (PEDRI), a vital UK-wide multi-stakeholder initiative that aims to facilitate a sector wide shift focused on establishing and advancing good practices for public involvement and engagement (PIE) with data-driven research and statistics.

You will work closely with public members, research and NHS communities, internal colleagues, charity partners, and funders to develop and implement plans for patient and public involvement and engagement.

This is an exciting opportunity for someone who has a passion for meaningful involvement and engagement of patients and the public in research, to shape and influence our work on the safe, ethical and scientifically robust use of data for research into the causes, prevention and treatment of disease.

The successful candidate will have a track record in working with individuals, groups and communities and can communicate complex information in clear, engaging ways. The post holder will have excellent influencing and negotiation skills, experience of working on complex projects with multiple partners and be comfortable with working at pace.  Patient and public involvement and engagement in data-driven research is a growing field. The successful candidate will show a willingness and experience of developing and delivering innovative approaches to involvement where previously opportunities may not have been obvious.

We are particularly interested in candidates who have experience of working with diverse communities and using trauma-informed practices to engage with those having lived experience of a variety of health conditions.

Main responsibilities

• Lead on the delivery of the PPIE strategy for the BDCD driver programme.
• Develop and deliver training for researchers working with patients and the public on involvement and engagement in health data research.

• Lead and facilitate meetings with public contributors to integrate meaningful PPIE throughout all aspects of our work.
• Develop methods to expand reach and ensure diversity of perspectives and work with the HDR UK PPIE team.
• Build and manage relationships with colleagues and relevant partners like the BHF Data Science Centre.
• Work closely with the internal communications colleagues to create and disseminate engaging content.
• Horizon scan and liaise with colleagues across HDR UK for opportunities to increase visibility of the institute’s engagement and involvement impact.
• Lead on the recruitment of new public contributors.

• Work to share best practice and examples of successful PPIE practices that could influence our work.
• Monitor and report on performance of PPIE across the Programme.

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