Registry Programme Manager Curator

We are a world class research-intensive university. We deliver teaching and learning of the highest quality. We play a leading role in economic, social and cultural development of the North East of England. Attracting and retaining high-calibre people is fundamental to our continued success.

The Role
Working as part of a multi-disciplinary team in the John Walton Muscular Dystrophy Research Centre, the purpose of this varied and challenging post is to manage and further develop the Global FKRP Registry, a patient registry for individuals with neuromuscular conditions caused by Fukutin-related protein gene mutation (FKRP). More information about the registry can be found on the website www.fkrp-registry.org.

The post holder will project-manage and take overall responsibility for running the patient registry and work with multiple stakeholders to develop the registry, provide informational materials for patients, families and healthcare professionals, and manage related communication and dissemination activities internationally.

The post holder will also provide managerial or administrative support to other relevant projects as required.

This is a full-time position available until December 2025.

For further information or informal discussion about this role, please contact emma.heslop@newcastle.ac.uk.

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