Information, Knowledge, and Support Adviser

Rare Dementia Support (RDS) is a UCL-led collaborative service offering specialist social, emotional and practical support services for individuals living with, or affected by, a rare dementia diagnosis. Our vision is for all individuals with, at risk of, or supporting someone with one of these forms of dementia to have access to information, tailored support and guidance, and contact with others affected by similar conditions. RDS is provided by the UCL Dementia Research Centre (DRC) at the Queen Square Institute of Neurology and the National Hospital for Neurology and Neurosurgery – where the post is based – and partners, and funded by The National Brain Appeal.

You will contribute to the work of the Rare Dementia Support (RDS) direct support team providing advice via support calls and in-person at the new Rare Dementia Support Centre (RDSC) by supporting people living with atypical, inherited, and young onset dementias, their carers, their families, and their friends, and professionals and practitioners working to support them. This role includes the opportunity to shape and direct special projects related to the development of new support groups, professional training, or patient and public involvement/engagement (PPI/E), in line with the activities of RDS and the wider Dementia Research Centre.

This post is offered on a hybrid basis with the expectation that you will be on site or at agreed regional work locations for 60-80% of your working week. You will also be expected to occasionally work on Saturdays and some evenings to attend support group-related activities which are usually held off-site in central London (but may require business travel). Restrictions on taking annual leave at times of high, section-specific workload may apply.

The post is available immediately and funded by a donation from UCLH Charity until 31 December 2026 in the first instance.

If you need reasonable adjustments or a more accessible format to apply for this job online, or have any queries regarding the application process, please contact the Institute of Neurology HR Team (ion.hradmin at ucl.ac.uk).

Informal enquiries regarding the role can be addressed to Nikki Zimmermann (nikki.zimmermann at ucl.ac.uk).

To apply, please upload a current CV, complete the online application form, and use the supporting statement section or upload a cover letter to outline how you meet the essential and desirable criteria for the role. Please do not upload any additional attachments as these will not be considered by the selection panel.

You will have an Honours degree (or equivalent) in a relevant health-related discipline and experience delivering pre-, peri-, and post-diagnostic rare dementia support. Extensive and expert knowledge of atypical, inherited, and young onset dementias, and up to date knowledge of the range of support available to people living with rare dementia and their families, and relevant aspects of the health and social care systems in the UK is essential.

Starting salary offered at UCL Grade 7 in the range £43,981 - £45,103, inclusive of London Allowance.

As well as the exciting opportunities this role presents, we also offer some great benefits; visit https://www.ucl.ac.uk/work-at-ucl/reward-and-benefits to find out more.

Customer advert reference: B02-10109

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